Thursday, October 21, 2010

Eosino.........what?

In case you were wondering about this picture from yesterday's Wordless Wednesday post.........




It is Ethan in my bed with his "barf bowl" on his head.  It was taken on Tuesday evening after a long day spent in the hospital getting blood work and IV fluids to get him rehydrated after a week long bout of nausea and vomiting, likely due to an ugly beast............ 

Eosinophilic Esophagitis

  It's a mouthful, but this is the disease that Ethan lives with every single day. Thankfully, right now his E.E. is pretty well maintained but for a couple of years he was a very sick little boy.  Ethan was finally diagnosed almost 2 years ago after suffering for far too long.  Throughout everything, he always seems to have a smile on his face and a positive attitude.  There is no cure, only strategies to deal with the symptoms.  Luckily, Ethan doesn't have many flare ups but when he does they are doozies and they are heartbreaking for me to watch as there is virtually nothing I can do other than comfort him.  He is fully aware of the foods he can and can't have and although I know he feels isolated when he can't have the ice cream, cheese pizza and peanut butter sandwiches that his friends are having you will rarely hear this kid complain.




Post a Comment